This IQVIA Institute Patient Advocacy Summit session focused on helping nonprofit organizations support patients through advocacy-led research and data Initiatives.

One focus group brought together participants from three advocacy organizations—Global Parents for Eczema Research, the Pancreatic Cancer Action Network, and UsAgainstAlzheimer’s—with experts from IQVIA.

• Addressing challenges in engaging patients and caregivers
• Listening to and incorporating the views of the patient and caregiver communities
• Building an ideal relationship between the patient, caregiver, and the advocacy organization
• Using health information technology

Download this ebook to learn more.

Participants

Korey Capozza, MPH, Founder and Executive Director, Global Parents for Eczema Research
Donna Manross, VP Scientific and Medical Affairs, Pancreatic Cancer Action Network (PanCAN)
Russ Paulsen, Chief Operating Officer, UsAgainstAlzheimer’s
Alexandra Weiss, Director, Strategic Operations Patient Advocacy, Healthcare Solutions, IQVIA
Sarah Johnson, Head of Patient Advocacy, EMEA Strategic Operations Europe, Middle East, Africa, and South Asia, IQVIA